Decisions, money and accountability
A non-profit handling children's health data owes the people it serves a clear account of who decides what, and where the money goes.
Who decides what
| Decision | Held by | Recorded |
|---|---|---|
| Whether to take on a programme | Foundation leadership | Board minute |
| Clinical protocol for a screening | Clinical lead for the programme | Protocol document |
| What is coded and how | Clinical informatics | Terminology and ValueSet policy |
| Release of aggregate data | Foundation leadership with the clinical lead | Release note |
| Release of identifiable data | Nobody, without the person's consent | Consent record |
| Pricing and Foundation contribution | Foundation leadership | Published schedule |
How a programme is funded
Programme pricing is published. Each beneficiary carries a Foundation contribution — 500 INR per student under RISE and 1,000 INR per student under EPIC — which reduces what the school or family pays. Corporate CSR funding, where it is available, reduces it further or removes it entirely for populations that cannot pay.
We publish the schedule rather than quoting case by case, because a non-profit that negotiates its price per school is not really running a programme.
Where CSR money goes
A CSR contribution is allocated against named beneficiaries and reported back with counts, not with photographs.
The parts that cannot be waived
Ask a governance question.
We would rather answer it than have you guess.